Beach & Ocean Pollution

Today 15 October 2007 is Blog Action Day. This means that bloggers around the web will come together to bring out a single important issue - the environment. Every blogger may post about "The Environment" in his/her own way and about their own topic. What is the goal?... to get everyone talking towards a better future for us and for our children.
http://www.blogactionday.org/

I would like to talk a bit about Beach & Ocean Pollution. This summer I took a trip to a beach in South Carolina. I love the sandy beaches, the warm ocean water and my all time favorite picking sea shells. I was appalled by the number of cigarette butts that smokers discarded on the beach while sunbathing, fishing or just taking a stroll. My suggestion for these people.... "Keep Your Butt Off The Beach"! The attached picture to this post was one that I took of these "Butts on the Beach".

We also find many other forms of garbage on our beaches. aluminum cans, plastic bottles, fishing lures, fishing line, glass bottles, and metal debris. All of these items sooner or later get washed into the oceans or seas. They all pose a threat to not only the living creatures of the seas but also to our own lives.

Toxic Wastes are poisonous materials that dumped into the ocean. They harm plants and animals in the ocean and also have an impact on our health. When toxic waste harms an organism, it can quickly be passed along the food chain and may eventually end up being our seafood. Toxic waste gets into the seas and oceans by the leaking of landfills, dumps, mines, farms and factories.
Toxic Chemicals in the ocean may be killing much of the fish population. One of the most harmful chemicals in the ocean is lead.
Medical Waste is also found in the ocean and is being tested to see if swimmers have a chance of developing Hepatitis or AIDS.
How do we decrease the amount of waste in the oceans?... by recycling as much garbage as we can so there are smaller amounts of harmful materials into the ocean.
Garbage Dumping pertains to harmful materials being dumped into the ocean. For example, human waste, ground-up garbage, water from bathing, and plastics. Most of the waste that has been dumped into the ocean in the early 1990's is still there today... Amazing.. Isn't it??!!
One main cause of garbage dumping occurs when sewage pipes share space with storm water drains. Rainfall causes the pipes to overflow and sewage waste mixes with the storm water drain, this flows into another water source such as a lake or river. Then the garbage pollutes the ocean.
Some other types of Pollution are:
Wastewater: The run-off from rainwater which usually ends up in rivers, lakes, and oceans.
Boat Pollution: This comes from the boat's engine when it is running. The chemicals in the exhaust from the engine which give off excess gasoline.
Car Pollution: When a car gets driven, smoke comes from the back of the car. This smoke ends up being acid rain.
Agriculture Pollution: Chemical pesticides, chemical or natural substances.

Chemical detergents, batteries, plastics, and sewage are all produced and used in homes by humans everyday. People are creating a risk to the plants and animals that live in the oceans and lakes.
How can we help the Environment of our Beaches and Oceans? First and foremost when you ARE on the beach, take your garbage with you!
- recycle plastics
- dispose properly of batteries
- use less water
- carpool
- recycling
- do not throw litter in the street
- do not wash your car or change your oil on the road or driveway. The oil and detergent will be washed into the storm drain.
- create less rubbish in the first place
- buy products in biodegradable packaging
- re-use your plastic shopping bags
** Tell your friends and family... or anyone you see littering about the dangers of rubbish and garbage to marine animals. Encourage them to do the "Right Thing" with litter!

This is our land, our beaches, and our oceans... Only WE can take care of them.

Do What Is Right For Our Environment!
Lori Palermo

First Catch Your Breath Luncheon, Ft. Myers, Fl. Oct.12,2007

I attended a Women's Lung Health luncheon, the very first in the State of Florida, and let me tell you this, the food was wonderful, the speakers were awesome, the true stories shared brought tears to my eyes, as I could relate to them, as I have lost so many of my family members to cancer,we all need to stop and smell the roses and look at what we have and appreciate each and every day.

There are no better representatives for the American Lung Association than those of us who live with a lung disease. Let's raise awareness and get some funding for lung research. Contact your local chapter and find out what you need to do.

Having a lung disease is no fun, but we can make the best of it, I do it every day.

We have to stay positive, a positive mental attitude will take us a long way. I met a wonderful lady at the luncheon and her philosophy is...You can make a difference and she is SO right....I hope you all have a great evening..

inhale 123---exhale 1234

Breathe Easy,

Sandy

Medicines working against each other

Hi all, here is an interesting story....I know it is an important topic..the other day I was not feeling well, coughing up that nasty stuff, we all know what that is ! I figured I best call my primary care doc and tell him what was going on as I was afraid of getting sick, he called in a prescription for me ...a Z-Pac , I went to the pharmacy to pick it up and low and behold the pharmacist said, Sandy we can not fill this for you at this time, because of your heart meds it will cause a problem !

Apparently my Cardiologist had it flagged for this type of med, soooo the pharmacist called my doctor and got another antibiotic for me, which seems to be doing just fine...

I am soooo thankful that this was caught, I know these Drs.are sooo busy, and I am looking on the positive side of it, but wanted you all to know how serious this is...and how dangerous it could have been for me.

Always make sure your Doctor reviews your chart before he calls in a prescription for you , keep a list of current meds, let the nurse know what they are to avoid any drug interaction.

inhale 123 exhale 1234

Breathe Easy,

Sandy

Gold COPD Awareness Lapel Pin & Smokefree Living Pin

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E-mail: Lori Palermo, loveyourlungs@yahoo.com

Help Bring Awareness to (COPD) Chronic Obstructive Pulmonary Disease and be Proud to be Living a Smokefree Life!

"When You Can't Breathe, Nothing Else Matters"
Lori

Checking The Mail

Good Afternoon everyone, hope all is well. I have been posting the blog for a while now, I would love to hear your comments, suggestions, ideas.

The picture is of my cat "The Big Guy" he certainly lives up to his name, he is waiting for the mail... I have another cat, "Missy" she and "The Big Guy " are brother and sister, I find so much comfort in them especially when I dont feel well, they sure do sense it.

I love to sing, it is good exercise for my lungs, apparantly "Missy" enjoys it to ! I wish you all a good day !

Breathe Easy,

Sandy

123 Inhale, 1234 Exhale

Oral Thrush

I recently received an e-mail from a patient in regards to an infection she developed in her mouth due to her (MDI) Metered dose inhaler. I think this is an important topic to talk about so all of us using MDI's can be extra careful.

This infection is called "Thrush". It is a yeast infection of the mucous membranes of the mouth, effecting the cheeks, tongue and roof of the mouth.

Folks usually get "Thrush" from not rinsing well after use of their inhalers. The chemicals in the medicine stick inside your mouth, causing the infection which consists of open sores. This infection is a side effect of taking inhaled corticosteroids.

I was using an MDI with steroids and because I did not rinse after eash use, the medicine stayed inside my mouth. After a while it became so sore and nasty. If I had rinsed after each use, I could have lessened the severity of the infection.

These sores are quite painful, keeping you on a diet of soft foods and liquids.
Your Pulmonary doctor will most likely prescribe an anti-fungal mouthwash or lozenges, which are used for 5-10 days. This infection does not clear up over night, if you are still having a problem after the prescribed time frame. Give your dr. another call, he may prescribe other meds for you.

A few suggestions to help you beat the "Thrush":

- Rinse... Rinse your mouth after every MDI use. (do not swallow!)
- Yogurt... Eat at least 1/2 cup to coat your mouth after using the inhaler.
- Spacer... Use a spacer which is a medical device approved by the FDA to be used by a patient to increase the effectiveness and safety of a metered-dose inhaler.

I have included a link that will give you more information on "Thrush" and the use of a spacer on your MDI.

http://www.radix.net/~mwg/inhalers.html

I hope this bit of info has helped you! Please dont' be afraid to share your own stories with us or any questions you may have. We are all here to help each other.

Breathe easy,
Sandy

1 2 3... Inhale ... 1 2 3 4... Exhale

Adopt the Sky

I am a member of COPDsurvivors by Cecil Montgomery and Karen Bastille. The following link was sent out by their site and I would now like to share it here "In My Little Corner Of The World".

On June 21, 2007, the EPA proposed stronger limits on smog in our air. But doctors and scientists say the new limits do not go far enough. Now powerful polluters are pushing back, trying to stop any change. Here's your chance to make your voice heard.

Click the link below and adopt a square mile of sky over the U.S. and sign the petition to demand clean air now. It’s free.

adoptthesky.org

Help ALL Americans Breathe Clean Air!!

Breathe Easy,
Sandy

1 2 3... Inhale ... 1 2 3 4... Exhale

Healthy Eating for COPD Patients

How many COPD patients can relate to this... "It takes a lot of effort to eat large amounts of food." As for myself, if I try to put too much in my mouth, I do get short of breath. It is hard to chew, swallow and breathe when your lung functions are not good. Therefore, eating small amounts of food at a time is recommended due to the energy used to chew and swallow. This is something they teach you if you attend Pulmonary Rehab classes.

I have listed a few facts that I hope will help you begin to "Eat Healthy". This is so important for those of us with COPD.

- Fish Oil and supplemental omega-2 fatty acids. Although no strong evidence supports this, researchers believe that fish oil may be beneficial for COPD patients as they have been shown to have anti-inflammatory effects on the body.
- Vegetables. High amounts of antioxidants are found in fresh, green and yellow-orange veggies. Such as kale, spinach, brussel sprouts, alfalfa sprouts, broccoli, beets and red bell peppers.
- Protein and Fats. A diet low in fat is best for healthy individuals. But for COPD patients, we need a greater amount of fat... healthy fat... in our diets. Proteins from fish, poultry, lean meats, also olive oils and oily fish are good to include in your diet.
- Fruits. Fruits are loaded with vitamins and easy to chew. Berries, peaches, plums, prunes, raisins, grapes, kiwi fruit, cherries, and oranges are high in antioxidants. Very good for your diet!

As you can see we have mentioned "Antioxidants" several times in our diet. Why? Because antioxidants fight disease by helping to repair damaged cells that are affected by the oxidation process which occurs during normal cell functioning. Vitamin A and carotenoids, C, E, selenium, flavonoids, lycopene, lutein and lignan all make up antioxidants.

- Dietary Supplements. Zinc and selenium in foods may help to reduce the severity of upper respiratory tract infections, but there is little evidence that vitamins and minerals have any ability to improve lung function. Please talk to your doctor before adding any dietary supplements to your diet.
- Red Wine. Research has shown that the chemical resveratrol, which is found in red wine, grapes and olive oil, can have health benefits. Also, some researchers believe that used in moderation, red wine may even provide protection to the lungs. It also should be noted that a high intake of wine can have a reverse effect, which may cause weakening of the immune system. Again, talk to your doctor before including alcohol or red wine to your diet.

You will find alot of information on the internet concerning "Healthy Eating for COPD Patients". My recommendation is to talk to your Pulmonologist about what foods are good for "your body" and "your health". We all may read something on a website or in a book and feel that this will "cure" us, as it is written in stone.
I would like to share with you a sad but true story written by Lori Palermo about her dad Wayne Litzenberger who passed away of COPD/Emphysema.

http://www.loveyourlungsbreatheforlife.com/arayofhope.html

Eat Well My Friends and Breathe Easy,
Sandy

1 2 3... Inhale ... 1 2 3 4... Exhale

A Women's Lung Health Luncheon

I received a very special phone call this week that I could not wait to share with all of you. You see, I have felt for a very long time that my "lot in life" was to help other human beings... to reach out to COPD and other Lung Disease patients. Starting my own BLOG has brought me so much joy and satisfaction knowing that I AM reaching out to these patients and making a difference.

Now to tell you my exciting news! The special phone call I received was from Mr. Kurt Goerke, the Regional Director/State Camp Director for the American Lung Association of Florida Inc. Gulfcoast Area, (I met Mr. Goerke at the Asthma Walk last spring).
Mr. Goerke invited me to the "Catch Your Breath" Women's Lung Health Luncheon to be held on Friday, October 12, 2007 at the Bonefish Grill, Fort Myers, FL. To say the least, I am ecstatic to receive this special invitation. Mr. Goerke also mentioned that he "has seen what I am doing on-line and greatly admires how I am reaching out to others."

The luncheon will be of great interest as their program consists of Speakers & Presenters from the Lee Cancer Care and Health Park Pulmonary Associates. Also Personal Testimonials from a Lung Cancer Survivor, a Lung Cancer Victim's Daughter and a Chronic Asthmatic.

For me to receive such a marvelous compliment from a wonderful person made me feel great! I will be attending the luncheon with honor. I hope you will look forward to my post after the luncheon, as I will tell you all about it!

Let us all reach out to one another and share our "Breath for Life".

1 2 3... Inhale ... 1 2 3 4... Exhale

Breathe Easy,
Sandy

http://www.catchyourbreathfortmyers.com

http://www.loveyourlungsbreatheforlife.com/blowthewhistleonasthm.html

Using O2 but still Smoking?

I would like to tell you about an incident that I observed in a restarurant the other day, which brought back memories of my "smoking days".

As a former smoker, I can relate to how very difficult it is to give up a bad habit. It wasn't easy quitting. I was fortunate that I had a great support team... my family and friends! It was difficult at first. I actually did it for my great nieces, right after they were born. I was at my nephews house for Christmas and my niece brought the twins over for a visit. I really could not hold them because I could smell the acrid cigarette smoke on my clothes. I did not want them to be subjected to the secondhand smoke odor no matter how young they were. So, that was the beginning of the end... of my "Smoking Days"! Those girls were my inspiration. I am thankful that I stopped smoking. I have been smokefree now for over five years and feel this is a major accomplishment for me! Every now and then I do get the desire to have a "smoke"... but then I remember where I was five years ago and how far I have come.

What brought that story on is this: I was visiting a restaurant the other day and happened to see a woman come in wearing an O2 cannula. I thought "how lucky I am that I do not have to be on O2". The woman went outside to sit in the smoking section. The next thing I noticed, she had taken her oxygen off and lit up a cigarette! Her cough was awful! Once she finished her cigarette she put her O2 back on. I imagine she just needed those few puffs to make her feel better??...

What do you think?

I am not exactly sure how I feel. At this point in my life I don't believe I would pick up another cigarette, but then if that "stressful situation" arises... what would I do? Again, being an ex-smoker, I know how hard it is to quit. But on the other hand... if you need oxygen on a daily basis, your lungs must be in pretty bad shape. So, why would you continue smoking?

I try each and every day to help myself to do the best I can with what I have... COPD/Emphysema and Asthma, all as a result of Cigarette Smoking.

I ask you all to please share your stories with me. You may send me a private e-mail or I will share your story with our readers if you would like.

1 2 3... Inhale ... 1 2 3 4... Exhale

Breathe Easy,
Sandy

I would like you all to meet my great nieces Lauren and Haley, the two beautiful little girls who were truly my inspiration to quit smoking. The girls will be 5 years old on 27 September 2007. Also my "quit date" anniversary of "Big Tobacco"!

Caregivers are Special People

I received an e-mail the other day from someone who was not only a friend but was was also my caregiver. Kathy read my BLOG and would like me to share her e-mail with all of you. But, before I do that I will give you a bit of a history lesson!

Kathy was/is a very dear friend of mine, we have known each other for many years. She was my caregiver when I was first diagnosed with CFIDS, Fibromyalgia, and a few other illnesses. Kathy was always there to help me... shower, dress and with eating. At the time I was first diagnosed with these illnesses, I was in complete bed rest, unable to use any motor skills. I couldn't stand on my own and had to have assistance to the bathroom. I can remember I found myself reading one word out of the dictionary because I had no control of my thought process. In order to use it... and not completely lose it, I would read one word for weeks until I could remember it.
I am grateful for each day that I can get our of bed and appreciate life... and I know that she played a huge part in helping me recover.

"Sandy,
I wanted everyone to know that I know, how much music does mean to you. I've known nyou for almost 30 years and some of the happiest times we spent was you singing along with the music and doing your karaoke. The music has helped you through some of the toughest times in your life. It's kept you going... and me too!

I've been there too with your family and saw how much everyone enjoyed the get togethers and sing-a-longs. Everyone had such great voices! The way your mother always whistled!!! I know where you get it from.

I miss hearing you sing, but I'm glad to know that you are still doing it.

Love,
Kathy"

Thank you all for allowing me to share a "piece of my past" with you.

http://www.nfcacares.org/about_nfca/

Please don't forget our breathing...

1 2 3... Inhale ... 1 2 3 4 Exhale
Sandy

Become a Smokefree Living Advocate

I hope you are all doing well tonight.
As for myself, I am still dealing with pain from the "shingles". Some of them have opened, others are slowly fading... but the pain is still intense.

As we are now in an era of trying to live "Smokefree Lives", there are sites in which you can join where you may voice your opinion to your Senators, Congressmen, etc. on TAKE ACTION issues.

I have joined the American Lung Association, receiving newsletters on a daily, weekly basis. I took action on the most recent: "Harmful Effects of Tobacco". I was very happy to receive a reply e-mail from Senator Nelson of Florida.



Dear Ms. Grace:

Thank you for contacting me with your concerns about smoking.

Medical science continually reveals new research magnifying the harmful
effects of tobacco. The link between cancer and tobacco has been well
publicized, but smoking is also a risk factor for the development of
countless other diseases. The costs society bears to treat these
illnesses are staggering especially when you consider the countless
resources allocated to battle often-preventable diseases.

There is no question that measures can be taken to reduce society's
dependence on tobacco. Of particular importance is educating children
about the dangers of smoking in order to prevent them from ever starting
the habit, and ensuring that tobacco companies do not market their
products to children.

Additionally, I believe we can act to lessen the harmful consequences of
smoking. To this end I cosponsored S. 625, the Family Smoking Prevention
and Tobacco Control Act. This bill would provide the Food and Drug
Administration (FDA) authority to regulate tobacco products with the
goal of reducing the number of people who start smoking and increasing
the number of people who quit smoking. S. 625 has been referred to the
Senate Committee on Health, Education, Labor, and Pensions.

I appreciate your concerns about smoking. As tobacco related issues
arise in the future, I will be sure to keep your opinions in mind.


P.S. From time to time, I compile electronic news briefs highlighting
key issues and hot topics of particular importance to Floridians. If
you'd like to receive these e-briefs, visit my Web site and sign up for
them at http://billnelson.senate.gov/news/ebriefs.cfm


My thoughts are we all need to "Get Involved" and "Take Action on issues that we strongly believe in.

If you follow the attached link, it will take you to a "Smokefree Advocates" Page on Lori's site. Here you may take a look at several sites to become involved with.

http://www.loveyourlungsbreatheforlife.com/smokefreeliving/smokefreeadvocates.html


http://www.lungusa.org/site/pp.asp?c=dvLUK9O0E&b=22542


Breathe Well My Friends... Living Smokefree

1 2 3... Inhale ... 1 2 3 4... Exhale

Sandy

Looks Like Shingles... OUCH!

Greetings from the "Sunshine State"

The first sign of Shingles may include itching, tingling, and burning. A few days later a blistering rash appears which can last up to 30 days!

I would like to share with you my very painful past few weeks! This is how it happened. Around August 12th, I seemed to have developed an ear ache, so I bought ear drops. I used them for a few days and thought my ear was feeling a little bit better.. although I felt a numbness. I thought it was the chamomile drops numbing my ear or rather the pain! But also my neck was sore to touch and actually my skin hurt to the touch it. The following day I saw awful blisters on my upper torso, to include my chest area, arm, under arm, neck front and back... I immediately called my doctor and got an appointment that day. As soon as he walked in and saw me, he said... "UH OH looks like shingles!"

What to do? He prescribed Vicoden for the excruciating pain. I cannot even begin to tell you how much pain I was in. Acyclovir 800 mg, 5 X's a day for 10 days which is an antibiotic. I started the regimen of pain pills, to my chagrin... the Vicoden did not even touch the pain. I called my doctor again, explaining to the nurse that I just could not take this pain any longer. Within a few minutes she called me back with a stronger prescription.

The new meds indicated, take one tablet every 6 hrs. as needed for pain. Sure enough it did help and finally after a few days of complete bed rest, I was able to get up and actually start to eat a bit. Because of the awful pain I could not eat, only drink water and take my regular meds and the "shingles" meds. Altho I did my best to eat some crackers and jello.. yummy!!

My biggest concern with the pain meds was that it could have created a problem with my breathing. Because of the nature of these drugs, there is a big warning on the bottle "Taking more of this medication then recommended may cause serious breathing problems."
Needless to say, I was very careful in taking them.

Something that we should all be aware of is that: "We need to be careful with any different medications we may need to take. If possible, research the side effects and reactions that could occur while taking these along with our 'normal' meds." Also remember... do not be afraid to ask you doctor any questions you may have.

Today is a better day, altho I still have some pain on the right side of my neck. From what I have read, sometimes there is residual pain from the shingles and it is called, (PHN) Postherpetic Neuralgia. The pain from shingles can range from burning or throbbing to a pain that is stabbing or shooting. In my case the shooting and stabbing would apply! I can only hope that this will go away quietly and stay away.

I know most people wonder... "what causes shingles?" Well, from what I have researched, if you have had Chickenpox than you are at risk for this potentially serious and painful disease.
Shingles is caused by the same virus that causes chickenpox. The virus can remain inactive in your body for years. If the virus becomes active, you can get a case of the shingles. What causes the virus to become active... stress and perhaps a weakened immune system.

One thing I mentioned in the beginning of my post is that at the time I was using the ear drops, I assumed the drops were causing the numbness to my ear. But after being diagnosed with shingles...I read that they can cause numbness to the ear if the outbreak is in that area.

I have attached a site link with more information about "SHINGLES".

If anyone has had this type of experience, please write in and share this with us. It is very helpful and important for all of us to beable to learn and share together.

Breathe with all the strength that you have my friends,

1 2 3... Inhale ... 1 2 3 4... Exhale

Sandy

http://www.ninds.nih.gov/disorders/shingles/shingles.htm

Singing makes me smile!

Singing brings a SMILE to my face!!

When I was younger... many moons ago, my cousins, aunts and my mom would gather in the kitchen to play their guitars and sing. I loved watching all of them and the beautiful sounds of the guitars. But what I loved the most was the wonderful sound of my moms voice, she could sing like a canary and whistle like a lark, what beautiful memories.

Over the years I tried my talent, singing alone so no one could hear me. When I got older, one night I was at a club and they had a talent show, my friends encouraged me to get up on stage and sing.... which I did!!! Later that night the club owner approached me and asked if I would come back on a regular basis to sing. WOW!! I was shocked... I didn't think I was good enough, but apparently he did! I "thanked" him for the nice offer, but declined. As many of my friends know me I am not shy, but I really wasn't ready for the "big time"! I just wanted to enjoy my music and sing for my friends to make THEM smile as much as I do when I listen to music.

About 7 years ago I ws singing at a Karaoke Club and actually had a request to sing different songs for the regulars.... "that made me smile"!

Then it hit... I was diagnosed with COPD/Emphysema... "dang it"! I didn't think I would beable to sing again. But do you know what?... It's okay now, I have learned how to work with "it" - COPD/Emphysema. The best thing for me is to keep singing. It helps expand my lungs and also... gets that trapped air out so that I can "Breathe in Fresh Air".

You see, I have a wonderful tool... my "Mind", that is how I deal with this crappy disease on a daily basis. I use to get out of breath when I sang, but I don't anymore because I have trained myself how to take breaths when necessary. I have done much research with regards to singing and breathing techniques.

Music truly does make me smile! Even as I am writing this BLOG I am SMILING... and I have a CD playing on my computer. I love to sing country, blues and soft ballads. I especially love to sing Irish tunes!

I hope many of you can relate to the wonderful sounds of music and all of the benefits that come from it... most importantly... how it makes "YOU SMILE"!

Please share with us your stories about the music in your life. Whether you have a lung disease or not... share with us your love for music!

I am also interested in patients using O2, is there anyone out there that is able to sing, while on oxygen? I would think it would depend on the individual, but again... let me hear from you!!

http://www.vocalist.org.uk/breathing_techniques.html


Relax and breathe through the sounds of music

1 2 3... Inhale ... 1 2 3 4 Exhale

Sandy

Community swimming pools - germs & more germs...

On a clear day, rise and look around you. And you'll see who you are.
A beautiful song that just popped into my head!!


For several months now a girlfriend and I have been going to the community swimming for senior water aerobics. Usually about a 45 minute workout each day.
I just found out that it is NOT the best avenue for exercise.
I was instructed not to use the pool because of the GERMS and BACTERIA in the water. Well you know that some people do their **** in the pool... YUCK... and even though they use chlorine, it does not kill all of the bacteria. So, I will be exercising indoors with my exercising techniques that we posted earlier in our blog.

Also, with anyone having an open wound, the bacteria in the water is not good. The bacteria or chlorine may cause an infection to set in.

If you have breathing problems but enjoy swimming, try to stay in the shallow sections. I did notice a shortness of breath because of the pressure in the deeper water.

Just a few tips that I thought you may be interested in!! I am sure by now you know my reaction to GERMS!!!!!! I am scared to death of them. So when a doctor tells me to "Stay Away"..... by golly that's what I do!!

"Life is not measured by the number of breaths we take, but by the moments that take our breath away."

1 2 3 ... Inhale ... 1 2 3 4 ... Exhale

Your fellow COPD'er,
Sandy

The Love of a Family - by Lori Palermo

I would like to share with all of you a Montage Video that I put together In Loving Memory of my dad, Wayne. For those of you who do not know, my dad passed away 26 December 2003 after a 13 year battle with COPD/Emphysema. Since that time I became very involved in lung disease and smokefree living work. In June 2006, on Father's Day, I launched my own website In Memory of my dad and In Honor of all patients and their caregivers who live every day with the debilitating Chronic Obstructive Pulmonary Disease. I have now become an Advocate For Lung Disease Awareness & Smokefree Living.

This video shows what a kind, caring, and loving husband, father and grandfather my dad was. He was truly the #1 Dad!

I love him and miss him with all my heart.

God bless,
Lori

Please scroll down to the bottom of the page to view the video.

A Lesson in Diaphragmatic Breathing

Good Evening Folks,

It's a very warm evening here in sunny Florida!! But who's complaining, as long as we have air conditioning... thats all that counts!!

I would like to take you back to Lori Palermo's vacation with me at Ft. Myers Beach last month. One evening Lori and I were talking about her dad being barrel chested with his COPD and the different ways he would sit when he tried to breathe. I began explaining to her how we COPD'ers breathe differently than "Other Folks". Meaning that we use "Diaphragm Breathing". When folks without a breathing problem "inhale" their stomach goes in... but when we take a "breath" or "inhale" our stomach goes out. Lori and I practiced for quite awhile.

We had a good time and it was funny watching her... LOL, but it was also very educational. You actually had to be there to see us... both of us sitting face to face, our shirts tucked up, with our hand placed on our stomach, being able to feel and see the difference in our breathing technique. It's one of those things that you really have to concentrate on what you are trying to do... just ask Lori!! After several tries... well maybe MANY, MANY tries.... she finally accomplished the breathing technique. I even got a bit confused myself trying to go back and forth between her "normal" breathing and our COPD'ers breathing!

Now you ask... Why do we do this? Well, we are trying to exhale the stale air in
our lungs and exchange it for good clean air.

Put your hand on your stomach and practice your "Diaphragmatic Breathing".

I have attached two sites that will give you more information on Diaphragm Breathing.

http://www.pe2000.com/breathe.htm

http://www.petethomas.co.uk/saxophone-diaphragm.html

Breathe well my friends, breathing is how we live!

1 2 3... Inhale ... 1 2 3 4 Exhale

Sandy

Pursed Lip Breathing

Hello to all my friends!

I hope you are all having a Healthy and Happy summer! It's hard to believe we are already into August.
I just returned home from a fun-filled vacation, visiting family and friends in Massachusetts and New Hampshire. Funny... I needed to come home to rest... from my vacation!!
While on vacation, I woke up thinking about "pursed lip breathing"! I realized I had not added that important piece of information to my "Breathless on the Beach" post.

So, here we go......

When Lori and I returned back to our destination from our walk on the beach...
well let me back up a bit, when I told Lori that I was becoming "short of breath" and anxiety was grabbing hold of me I also told her to keep talking to me so that I could focus on her conversation and not on being "SOB" and my "anxiety". One very important factor was that as we were walking back and Lori was talking to me I was also practicing my "pursed lip breathing". This type of breathing "controls your breathing", slows down your anxiety and helps you from gasping for your next breath...as long as you "stay focused".
As Lori and I returned from our walk, I mentioned to her how the "pursed lip breathing" had also helped me. She told me she saw that I was "PLB". She remembered seeing her dad use this breathing method many many times. But never truly understood its meaning and effectiveness until she saw how it helped me get through this situation.
Here is a link to an informative site about pursed lip breathing.

http://lungdiseases.about.com/od/generalinformation1/a/shortofbreath.htm

I would be very interested in hearing what type of breathing methods help your "anxiety" and "shortness of breath" situations. Please write to me and share your stories.

Live each and every day to its very fullest....

1 2 3 Inhale ... 1 2 3 4 Exhale
Sandy

Breathless on the Beach

I would like to share this experience with all of you, it is very important to remember and practice this in case you are ever in this same type of situation. You must know how to react and how to take care of yourself.
The first evening Lori was at Ft Myers, we decide to head straight for the beach to take a walk. It was still warm, but the sun was beginning to set and the sky was a beautiful array of clouds and brilliant colors of orange, yellows and reds. We were walking along the shores feeling the warm sand and water on our feet, and searching for sea shells. Since it was the first time we had actually met in 2-3 years, we were just talking about anything and everything.
All of a sudden I had to stop, I told Lori that I was getting short of breath and anxiety was grabbing hold of me. We had walked so far without even realizing it.
I became scared knowing that we had to walk so far back. My shortness of breath scared me.... my anxiety scared me.... it became a viscious circle.
I explained to Lori what was happening, but told her to remain calm. I knew what I had to do to overcome this situation. I asked her to keep talking, that way I could concentrate on her conversation and overcome my anxiety by not focusing on it. By overcoming my anxiety, I could also overcome my "shortness of breath". Of course I did not have my "rescue inhaler"... which was a big no-no!!! If I would have had the inhaler with me, the situation would have been a whole lot less stressful. But... we all make these mistakes.
Lori and I took our time walking back, she talked to me and I focused on HER... NOT on my "Shortness of Breath". By the time we got back to our destination, I was feeling fine. I had made it through a very stressful and I may say "scarey" situation.
As Lori has been learning so much about COPD since her dad passed away..... this was a very good "hands on" experience for her to witness.
Please take this experience and try to learn from it. It may not be easy the first, second or third time..... but you can do. You can take control of your anxiety and your shortness of breath.

If anyone has had an experience of this type... please write in and tell us all about it. Let us know how YOU came through it.

Until next time
1 2 3... Inhale ... 1 2 3 4 Exhale

Breathing is our Lifeline,
Sandy

A Message from Lori Palermo

Good Morning from the beautiful Pocono Mountains in Northeast Pennsylvania. It is a gorgeous day here. I hope everyone is having a "blessed breathing day" so far!
Since I have not added a BLOG for Sandy, I would like to say a word or two before she adds her BLOG.
Sandy and I have been corresponding by e-mail for the past 2-3 years. We have spoke on the phone and become very good friends. Several months ago, Sandy invited me to fly to Florida and spend a week with her. Well... needless to say, I immediately booked my flight. I recently spent a week with Sandy on the absolutely beautifl white sandy beaches of Ft. Myers, Florida... a place where my dad loved and took my family many times.
Sandy is an awesome person. We bonded the moment she picked me up at the airport and had an absolute BALL the whole week I was there. I visited her home, where I met her friends Linda, Joan and Linda's son Nick. They are truly really cool people and were very generous to me.

Now, Sandy will add a BLOG about an experience that we had while walking the beach the first evening I was there.

God bless you all.
Lori

P.S. Sandy and I are working on some ideas we have to give you the COPD patients, families or caregivers more information. You'll will be seeing some changes here at
"Sandy's Little Corner Of The World."

Upper & Lower Extremity Chair Exercises

Greetings all of my friends! I hope you have had a good breathing day. The humidity has hampered my breathing with a bit more tightness in my chest. But, as usual... we all do learn to cope with this.

Upper Extremity Chair Exercises:
For shoulder strengthening you may now grasp the seat or side arms of the chair and push down and pull up.

Another useful activity are the "Broomstick Exercises".
- Use the full length of an old broomstick, and use it to both mobilize and strengthen your upper extremities, and to develop neck and spine mobilization.

- Holding the broom palms down, bring the broomstick from yourlap up to your chin, and from there extend the broomstick over your head, and then back again.

- Palms down, place the broomstick over your knees, and then with arms extended swing it up and over your head and back down again.

- With the broomstick over your head, rotate the broomstick and your head slowly as far as you can to the right, and then to the left.

- With the broomstick held at chin level, bring the broomstick straight down towards the left hip, and then to the right hip.

- With the broomstick heldat chin level, touch the right end of the broomstick to the left knee, and at the same time look up over your left shoulder. Repeat this exercise touching the left end of the broomstick to the right knee,while looking up over your right shoulder. These neck and spine mobilization exercises may be difficult at first if your neck and spine are stiff. Be gentle.

As your strength improves, light weight dumb-bells may be used. Again, one or two pound weights are more than enough.

Lower Extremity Chair Exercises:

The quadriceps exercises should be done from the chair one leg at a time. Straighten your right leg out, then lift it from the floor until it is straight out, then tense the thigh muscles and hold the tension for five seconds. Relax, andn lower your leg to the floor and rest for five seconds. Repeat the cycle and then do the same for the left leg.

These quadriceps exercises may be too strenuous at first for some. In that case, start out with both feet flat on the floor, and tense both thighs for five seconds, relax for five seconds, and repeat the cycles.

For hip strengthening, sit up straight, knees together, and then lift the right knee up, then swing it outward, put the foot down, then bring it back up, and return to the starting position with the knees touching. Repeat the cycle and do the same for the left leg.

For hip, lower abdominal and lower spine exercise, place your heels directly in front of the chair, and then push your heels into the floor. As you do this, tense your lower abdominal and back muscles. Hold this tension for five seconds, relax for five seconds and repeat the cycle.

If you do these excercises faithfully for about two weeks, you should now be prepared to begin walking training. And if you have been further developing your dyspnea recognition skills and breathing control skills, you will be even better prepared for walking and controlling any dyspnea with increased activity.

With all of these exercises, from the beginning... at your weakest point, through your continuation of becoming stronger... I strongly suggest a coach to help and support you through this regiment of activity.

Stand Tall and Breathe My Friends and Always Remember,

1 2 3... Inhale... 1 2 3 4 Exhale
Sandy

Lower Extremity Exercises

Welcome To My Little Corner Of The World... here on this beautiful sunny, yet slightly breezy day in Lehigh Acres, Florida!!

I'd like to talk about your lower extremity muscles, which are the Quadriceps Muscles. These are on the front of your thighs and run between your knees and hips. These muscles are very important because they stabilize the knee, and are essential to enable safe walking and getting up out of a chair. Quadriceps deterioration happens very rapidly in people confined to bed. Restoring their strength is a crucial step in preparing to get our of bed to a chair, and to walk safely.

The Quadriceps may be exercised by having your legs flat in bed, and then tensing the upper leg muscles firmly for five second, then relaxing for five seconds, and then repeating the cycle for two or three times. As in the previous POST, build up this exercise as your strength improves.

Another lower extremity exercise is to strengthen the muscles about your hips and lower abdomen. Have your legs flat in bed, press your heels firmly into the mattress for five seconds, relax for five seconds, then raise your heels an inch or two off the mattress for five seconds, then relax for five seconds, repeat the cycle tow or three times. Again, build up this exercise s your strength improves.

If you have been confined to a bed for some time, or feel weak, you should never attempt to get out of bed without assistance. Professional supervision by a Nurse or Physical Therapist is preferred.
Your initial chair should be a firm plain wood chair with a high back, with side arms. A Walker device for additional arm support should also be used for the transfer from bed to chair. Preferably two caregivers should be on hand to help you. Wearing a stout Safety Belt until you are well mobilized is recommended.

When you are ready for the move, do not attempt to directly stand on the floor. Many weak patients develop Postural Hypotension, where your blood pressure quickly falls on standing up. This can lead to dizziness, fainting or falling. You should first, dangle your legs for a couple of minutes, if no dizziness is felt, then place your feet on the floor for a minute or two. If you feel the slightest hint of dizziness or exessive weakness, you can easily be slid back into bed. Do not get discouraged if you don't succeed on your first try. Progress to the chair only when you feel able to do so. Recommendation spending no more than five or ten minuts in the chair for the first time.

As your strength improves and your caregivers gain confidence in your capabilities, you may spend more time in the wooden chair, and then move into an easy more comfortable chair. Getting out of a deeper easy chair may be more difficult, so be sure your standing up strength and skills are adequate.

Well folks.... I think I have given you plenty of information to think about today.

Until we meet again... 1 2 3 Inhale ... 1 2 3 4 Exhale

Sandy

Beginning exercise for the frail person with COPD

Hello again, and I hope everyone is having a lovely day!

Some persons with severe COPD are so severly debilitated and weakened they are confined to bed, or so weakened they have great difficulty getting into a chair. Ideally such patients should have initial professional help from a Visiting Nurse service, who in turn, may be able to arrange for a temporary visiting Physical Therapist.

Even if bedridden, the patient can and should begin their rehabilitation with chest mobilization and corrective breathing training, as well as developing Pursed Lip Breathing skills. This should provide some dyspnea relief, and having some breathig control skills will be helpful later when exerting and needing more ventilation.

Exercises that anyone can do are called "Isometric Exercises." This is simply tensing muscle groups against one another. This type of exercise can be done by anyone, even those with severe arthritis problems, as there is little or no movement of joints involved.

For now, I will get you started with the Upper Extremity Exercises.
Upper extremity exercises for those confined to bed, may be done by clasping your hands in front of you, next to the chest. Then press your hands together, and maintain this tension to the count of five. Repeat this cycle two or three times until you can do this exercise fairly easily. This will strengthen your shoulder muscles.
Do this exercise (and all of the other exercises) at least every two hours, and preferably every hour. Then build up your strength by a combination of stronger pressures, longer times of applying pressure, and more cycle repetitions. You have to decide what is best for you, but initially stay with pressure times of about five seconds until you are stronger.
Another shoulder muscle exercise is to place your hands by your side, palms down, next to your hips, then press your hands firmly into the bed to the count of five, relax to the count of five, and then repeat the cycle two or three times. Extend this exercise in a manner noted above as you get stronger.

Good luck my friends, I know exercise is not easy when your feeling poorly, but believe me... it will help you.

Enjoy your day,

Sandy

1 2 3... Inhale ... 1 2 3 4 Exhale

A Popular Home Exercise Device

Good Morning & Good Day To All!!

I would like to continue with my Activity & Exercise mini-series. If you are considering a home exercise device I would recommend one of the simpler and less expensive Stationary Bicycles. These devices are generally stable, and there is minimal danger of falling. Also if you become "short of breath" you are already seated. All you have to do is simply stop peddling, and brace your arms on the handles for rescue breathing control. As you first begin on the bicycle, adjust the tension so you can peddle with only minimal effort, and be able to maintain that peddling effort continuously for about two minutes. As you get stronger, try to gradually extend your peddling time to five minutes. When you can achieve that level of activity, then try applying slight increase in peddling tension. As you become more comfortable, try to gradually work up to ten minutes of continuous peddling, and do this preferably twice a day. A perfect place to put your exercise device would be in a room with a television or stereo to listen to music or news. This will avoid boredom while exercising. And it's always fun to exercise to music!!!

I feel that learning the proper breathing techniques are important with exercise, so I am going to go on to explain the "tricks" to breathing & exercise.

As with all exercise programs, the "trick" to progressive exercise success is learning how to recognize your dyspnea level that you know you can control with slow / deep breathing, or Pursed Lip Breathing. When you reach that point you should stop, regain your breathing comfort, and then continue with your exercise activity. If you continue beyond this breathing control point to levels of severe dyspnea, this makes it difficult to conrol and re-gain your breathing comfort. Be patient, this may take time, and sound very scarey... but gradually push your breathing control point to further effort. As your peripheral muscle strength improves you will find that you are capable of more exertion. This increased exertion capability will be done within dyspnea levels that you know you can control. If you have the skills to exert yourself, and be able to recognize your particular dyspnea control level, and then be able to manager your dyspnea, you will have the confidence to become progressively more active in whatever activity your are doing. This will be a wonderful feeling for you and a major step forward!

A few devices I would not recommend are treadmills or stepping devices for home use because of the danger of falling. Definately the minature trampoline devices are dangerous and should be avoided. As to arm weight training, avoid heavy weights. A pair of dumb-bells for upper extremity exercises is convenient, but they should not weigh more than five pounds, and one or two pounds is adequate for most individuals. Remember, you are basically not training for strength, but mainly for reconditioning and endurance.

I hope that I have given you some valuable information. That info that I pass on to you is all of my own life experiences in my day to day life with COPD/Emphysema.

Until next time my friends.... "Live Well & Breathe Well"

1 2 3... Inhale ... 1 2 3 4.... Exhale,
Sandy

Spiriva Capsules

Good day to all!!!
I was just thinking about a problem I have had with Spiriva Capsules on more than one occasion and wanted to share it with all of you and would also like to know if anyone else has had this problem.

I have encountered empty capsules in my prescription. When I punctured the capsule and tried to inhale the powder, there was nothing there, you could not hear anything...usually the capsule vibrates when you inhale the powder, and you know when the capsule is empty because you do not hear the sound.

I called Boehringer Ingelheim to complain and their response was that "they could not do anything as I was the only person who has complained." Now I know for a fact that there are others who have had the same problem with the capsules. They also complained to B/I and received no satisfaction.

Please respond if you've also had the same problem!! I'm curious to know how many this has happened to.


1 2 3 ... Inhale ... 1 2 3 4 Exhale

"Live for the Moment"
Sandy

Structured Home Exercise

Good afternoon and what a beautiful day it is!

This post will talk about a home exercise without using any type of exercise device. We will get to those type of devices in a later post. Enjoy!!!

A structured home exercise that I would recommend is Yoga training. Yoga Training videos developed by Dr. Vijai Sharma are excellent. Dr. Sharma is a Clinical Psychologist and credential Yoga teacher with a special interest in COPD. I also need to mention that Dr. Sharma has Emphysema himself. Dr. Sharma has developed two training videos "Stretching Breathing Exercises adapted for people with severe COPD" and "Stretching Breathing for COPD for all levels of fitness." These videos are carefully designed to first provide safe training for a frail person with severe COPD, and secondly to provide more strenuous exercise for less disabled individuals.

The Yoga movements provide excellent stretching and posture maneuvers to mobilize the spine and chest wall,and improved general coordination and balance training exercises. Yoga is intimately related to breathing exercises, and there are good breathing instructions directed to COPD needs. Teaching coordination of breathing with general body movements is well done, and this provides a bridge to more efficient movement for performance of activities of daily living. Dr. Sharma has a website with many topics of interest for COPD patients and you may purchase these videos from his site at: http://www.mindpub.com/

Smile, breathe and go slowly. - Thich Nhat Hanh

1 2 3...Inhale ... 1 2 3 4...Exhale
Sandy

Breathing Control Skills

Today I would like to continue our "mini-series" and talk about the effective alternatives to the formal exercise programs and for long term follow-up exercise.

This is based on a simple technique that if you have breathing control skills and can control your exertion dyspnea, than you will not be afraid of becoming short of breath. And.... if you are not afraid of developing uncontrolled dyspnea you will become more active, because you want to become more active and therefore you will do the many desirable things that you previously could not do. You may be thinking.... "well, it's easier said than done!!" But as you regain your ability to do more and more activities of daily living, you will develop more and more strength doing these activities. You will become stronger in body and mind, feeling more sure of yourself and also feeling much better about yourself.

Be proud... you worked hard in your pulmonary rehabilitation program. And then you continued and took it a step further... you learned "breathing control skills".

Many home bound people with COPD find that with reconditioning and improving breathing control skills they can participate in family activities, or climb stairs once again. And with further progress they can begin activities outside of the home such as; visiting friends or going shopping. But all of this involves progressive exercise, which is a natural part of simply becoming more active. And a tip to "brighten your day"... this form of exercise is usually neither boring or unpleasant!!

I am going to leave you with that bit of knowledge for today.
Please check in tomorrow as I will talk about "Structured Home Exercise - Yoga Training".

I would like to encourage you all to please post and tell us about your exercise program, or send in any questions that you may have. I am sure we have many "exercise friends" who can share their stories.

Breathe well tonight my friends... 1 2 3 Inhale ... 1 2 3 4 Exhale

Sandy

How to use Spiriva

Happy Friday!!

I would like to interrupt my BLOG concerning Exercise & Breathing, and share with you an error that I made this morning while taking my meds.... which scared the life out of me!

While getting ready to use my Spiriva inhaler, I mistakenly swallowed my Spiriva capsule instead of putting it into the inhaler. Well of course I panicked! I immediately called my pharmacy but they had NO information on that type of situation. The pharmacist did however advise me to call Poison Control. They told me I would be okay and that people do it quite a bit. Also that it would be okay for me to use my inhaler this afternoon. I decided to forgo using my inhaler today. I imagine if I had swallowed more than one capsule than it could have been dangerous.

Sometimes we may be in a hurry or just not thinking and do not take the time to check the meds we are about to take. Just a warning..... always be aware of which medication you are taking, the correct dosage you are to take and the correct time you are to take this medication.

To learn more about Spiriva, check out the sites below:

http://www.spiriva.com/

http://www.spiriva.com/hcp/HcpController.jpf


Have a great weekend..... take your meds... CORRECTLY and "Breathe with Ease"

1 2 3... Inhale ... 1 2 3 4 Exhale
Sandy

Exercise Programs

Learning breathing control can improve your lung efficiency and this will help you to feel better. But to achieve the full rehabilitation benefits, it is important that you also rehabilitate your cardiac and peripheral muscle function. There is only one way to do this and that is by a progressive exercise program.

Many pulmo rehab programs have a large emphasis on exercise, with formal classes of exercise training using equipment such as bicycle ergometers, treadmills, structured walking or stair climbing supervised by experts. These programs have documented considerable patient rehab benefits. This is an excellent way to effectively begin your rehab program.

Unfortunately there are some major snags with these formal exercise programs. First: they may not be available to your or may be inconvenient for you to attend. Second: ideally, exercise should be done every day for efficient rehab and many programs meet only two or three times during the working week and very rarely on weekends. Third: most formal programs are limited to only two or three months by insurance payments, and long term follow up is not paid for by most insurance plans. And last but not least.... formal exercise is frequently boring and unpleasant. The exercise training required will produce dyspnea and we all know this is not a pleasant experience. These problems are compounded especially if you are doing exercises that you do not enjoy or if you are exercising at home and are no longer in a supportive rehab environment to encourage you. Sadly enough for these reasons most patients stop exercising within a year or so. This is very unfortunate because what you had initially gained by exercise, you will now gradually lose. "If you don't use it, you will lose it".

In my next BLOG I will tell you about the alternatives to formal exercise programs and for long term follow-up exercise.

I hope you will join me. And please, add any comments or questions that you may have for me.
In the meantime....

Breathe Well and always remember

1 2 3... Inhale... 1 2 3 4 Exhale

Your friend,
Sandy

"Shortness of Breath", Increased Activity & Exercise

Welcome back to "My Little Corner Of The World"! It's been awhile since I have posted, but I hope you all have been taking care of yourselves and breathing well.
This will be the first post in a so-called "mini series" on the topic of "Shortness of Breath" & Exercise. In our first "episode" you will have limited activity and breathing abilities, but as we reach the end of our "mini series" you will have learned a new way to breathe and will be on your way to an exercise training program.

The shortness of breath that comes with COPD typically limits a persons ability to be active. Understandably, you would think that becoming involved in an exercise program would be out of the question.
You probably have realized a gradual reduction in the activities you enjoy that involve any type of physical effort. And even if your COPD is only moderately severe you probably have noticed a redution in your "Quality of Life in Daily Living". I'm sure you have attributed this decline to your dyspnea, which is correct. But, this decline in your exertin ability is much more complicated.

Next is what I call, a "vicious circle". Exertion requires muscular effort, and muscular effort requires a steady supply of Oxygen, which is an essential metabolic source of energy. And muscular effort also produces waste products of metabolism, which is Carbon Dioxide ("CO2") which the lungs must dispose of. Are you still with me?... Okay... The lungs are critically important in taking in Oxygen and getting rid of waste Carbon Dioxide. Your breathing impairment will certainly limit your Oxygen delivery and CO2 excretion.
However, Oxygen and CO2 are carried to and from the muscles by your blood, now if your heart muscle becomes deconditioned by inactivity or diseae and can't pump blood efficiently, this may be a significant factor to your limited exertion capabilities.

Then there are peripheral muscles, the external muscles, mainly the legs and arms and whether or not they are efficiently receiving Oxygen and producing their required energy. Unfortunately, perfectly normal muscles, can become deconditioned by inactivity and become inefficient at the cellular level in producing the required oxygen for activity. Severely deconditioned muscles are very inefficient in processing this important oxygen metabolic energy, and muscle deconditioning is frequently a serious limitation to activity for the person with COPD. These deconditioned muscles require more Oxygen and give up more CO2 for a given work load, which brings on an even greater burden to the lung and heart components of this overall complex system.

The person with COPD progressively limits their activity because of exertin related dyspnea. As a result of this decreased activity, the heart then becomes deconditioned, and becomes a less efficient pump that has to work harder to achieve the same task level. Fortunately cardiac funtion limitation is usually not a major problem. But improving cardiac performance with an exercise program will provide some help to your overall exercise capabilities.

Peripheral muscle, the muscles of the arms and legs... deconditioning is a major culprit leading to severe weakness in COPD. Do you remember the "vicious circle"I spoke about earlier?... where inactivity leads to deconditioning and deconditioning leads to muscular weakness and inefficiency, which in turn now requires more effort by the heart and lungs for the same level of muscular effort.

Well, I think that is a very good start in explaining to COPD patients that activity and exercise beginning in slow moderation will condition not only your muscles in your arms and legs, but will keep your heart from working overtime due to the lack of oxygen from your diseased lungs.

Until next time,
Breathe well my friends...
1 2 3... Inhale ... 1 2 3 4... Exhale,
Sandy

New Idea for Providing Emergency Contact Info

I found this article and thought it would be very helpful to so many of us with cell phones. I hope everyone will put it to good use.

There is a new movement out there to save lives. They call it ICE.
ICE is an acronym for In Case of Emergency and is a new wave geared to encouraging people to provide easily accessible contact information when they are in trouble. As most people in the world now carry a cell phone, it is a wonderfully easy way to access emergency contact information for almost anyone with a cell phone.

ICE is the brainchild of Bob Brotchie, a paramedic in Cambridge, England, who struggled to get contact information from his patients in times of crisis. Brotchie recounts having access to the cell phone of his patients, but still not knowing who to call. As he says, "just because someone has mom or dad in the cell phone log doesn't mean they would actually want you to call them."

The patient's first choice might be a friend, other family member or contact. Brotchie suggests that people add a listing in their cell phone, ICE, which stand for In Case of Emergency. Under this heading a person could list the names and phone numbers of people they want contacted in any emergency. They can list multiple contacts and designate them as ICE-1, ICE-2, etc. They could include numbers for their spouse or significant other as well as their health care provider for notification in a medical emergency, and their employer.

Source: http://respiratory-care.advanceweb.com/

Breathe Easy My Friends

1 2 3... Inhale ... 1 2 3 4 Exhale,
Sandy

Germs, Germs, Germs!!

I know that I have spoke about this topic in another post, but I just have to remind everyone that when you are sick, please be so careful when you are out in public. It is very easy to spread these GERMS...... and it is so easy for us with Lung Disease to catch a cold, the flu, bronchitis or even worse pneumonia. Here are a few of the situations I have experienced in the past week.

I was in the cell phone store the other day and while waiting in line for my turn, the fellow in front of me... coughed, wiped his mouth with his hand and then leaned on the counter!! Can you imagine that?? I immediately took out my hanky and covered my mouth and nose, I got scared... I can't imagine anyone doing that. I did go to another line and waited my turn. The fear of catching a cold or whatever was floating in the air totally overwhelmed me...

I went to our local Walgreens drug store to pick up a few things. I got to the register and the gal waiting on the person in front of me let go of a big sneeze... and of course I jumped back, I could see it coming. I asked her if she had any sanitizer to use on her hands, get this, she said "don't worry, I'm not contagious". I replied..."I do have to worry, I have a lung disease and you just spread all kinds of germs around!" She just glared at me and slammed the change into my hands. YEPPER, I was pi..ed! I found the manager and told him what happened. I told him how frightened I get as I take a chance each and every day going out and dealing with the public and I don't have to be subjected to this kind of treatment. He said he would take care of the situation. I also asked him to have a sanitizer by the register. When I got home I wiped everything down. I always carry my own pen, in case I need to sign anything... at least I know it is germ free. And I always carry wipes with me.

Then yesterday, I was walking into the deli where I work and a customer walking in front of me "coughed" and never covered his mouth I was ready to whack him!

Now as I am posting, I have laryngitis and a sore throat. I have already called my Pulmonologist and will be on an antibiotic. A big concern... Pneumonia, hopefully I caught this in time and if not... then I take it one day at a time.
This is how vulnerable our bodies are in picking up infections, we are going out in public, and again the panic, fear and anxiety... I could tell I was getting sick and then... overnite.... WHAM!

While at work, a co-worker asked me if I have ever had bronchitis, I replied "YES I have and I don't ever want to have it again!" It scares me, the fear sets in...especially this time of year.

I hope you will share your experiences, helpful hints or comments here on "My Little Corner of the World". I would love to hear from you, and just think you may beable to help someone else breathe easier...

1 2 3 Inhale ... 1 2 3 4 Exhale,
Sandy

Air Fresheners

We use air fresheners every day, in every shape and form.
We use them in our cars, our kitchens and bathrooms... most likely in almost every room to help eliminate odors and keep our homes smelling fresh and clean. When you look in the supermarket, you'll find a combination of many scents available to purchase.
Personally I do not use them. The chemicals in them are quite harmful to those of us who's lungs are compromised.
Aerosol sprays are also entirely out of the picture for me. That would be like smoking a cigarette. Some candles are ok, but the flowery kind are not good. I usually burn relaxing scented candles. I also use a candle snuffer so it doesn't smoke once the flame has been extinguished and I use a candle topper. This fits on the round type jars and has holes in the top to eliminate the smoke. They can be found in most candle shops and they really work!!

I found an article in our town newspaper about "Air Fresheners" that I would like to share with you:

Q: Some lamps on the market use fragrance oil. Apparently they use a catalytic burner. Do these create an air pollution health hazard in the home?

A: Yes. Air fresheners release volatile organic compounds into the air. These chemicals may cause health problems in some people, according to Dan Tranter with the Minnesota Department of Health Indoor Air Unit.
A U.S. Institute of Medicine report found limited or suggestive evidence that fragrances exacerbate asthma.
Another study found that a chemical (L4 dichlorobenzene, or "L4 DCB") in many air fresheners may reduce lung function. Even a small reduction in lung function may indicate some harm to the lungs. According to the study, the best way to protect yourself, and especially children who may have asthma or other respiratory illnesses, is to reduce the use of products and materials that contain these compounds.
If you are using the fragrance lamps to mask an odor, it's far better to find and eliminate the cause of the odor. Increasing ventilation by using kitchen and bathroom exhaust fans also can help.
Information about household products, including air fresheners, can be found at http://householdproducts.nlm.nih.gov.
Tranter recommends comparing air fresheners and choosing the one with the fewest and least severe warning statements as well as the lowest ratings for health concerns, flammability and reactivity, preferably a "0" for all three.

So my friends, when trying to freshen up your home, please think about this article and your health... take care of your lungs, they are your life... Breathe Easy.

1 2 3 Inhale... 1 2 3 4 Exhale,
Sandy

Socialization/Handicapped Parking

Have you ever noticed that when you park in a Handicapped Area and you get out of your car like everyone else does, folks look at you in disgust?... as if to say "Why are YOU parking in that spot?"... and wouldn't you just love to say... "Just because I don't have a physical disability that shows,I do have a hidden disability... I have COPD/Emphysema and SICK LUNGS DON'T SHOW."

I experienced a lot of those looks and sneers from people, when I used the handicapped parking spots. Those were times when I needed to do so, due to inclement weather, ill health. When I was feeling good, I would use the regular parking spots.

Here is an interesting point in which I need to share with you and get your opinions and comments. When I lived in New Hampshire I applied for a Handicapped License Plate, I had a form completed by my Physician, then took it to the Registry of Motor Vehicles. They accepted the form, I paid a small fee and was handed my Handicapped License Plates. New Hampshire required two plates, a mirror tag, which I could take with me if I were in someone elses vehicle. When I moved to Florida, I applied with a form from my Physician... and I was denied!!!... the reason...I am not "sick enough". How sick does one have to be? I have COPD, Emphysema, Fibromyalgia and OsteoArthritis. Guess I was sick enough in New Hampshire but not in Florida!

I am curious as to who actually has the right to deem a person to be "sick enough". Does he/she have a degree in the medical field? Does he/she know ME and my medical history?
Is there anyone that knows who we could contact with regards to these questions and what we need to do to have this situation reviewed and possibly changed?
Any ideas would be appreciated.

Let's all Breathe Together now
1 2 3 ... Inhale ... 1 2 3 4 Exhale

Breathe Easy,
Sandy

Flu Finder

I found a site that I thought may be very helpful to everyone and I would like to share it with you.

http://www.flufinder.com

All you have to do is insert your zip code and it will alert you as to what the flu index is in your area, I check it often. As you will find out, I check into everything when it comes to my health especially my lungs. If I can stay on top of such thing, hopefully I can do something to prevent myself from getting the flu, such as; plenty of liquids, proper diet and plenty of rest and a "real biggie"... stay away from large crowds!!! I was in a store today and a woman coughed and I PANICKED... really I did. I took my hankie out of my pocket and covered my nose and mouth with it. It actually scared me, I could visualize alllll of those germs floating in the air as I approached.

Breathe Easy,
1 2 3 Inhale ... 1 2 3 4 Exhale
Sandy

To Laugh, Breathe, and to Live!

Pulmonary Rehabilitation... it is a WONDERFUL thing to get into. It teaches us so much as to why we really need it, it teaches us to laugh, breathe, and to live a life we thought was gone forever! When I initially began this BLOG I had said "Once we are diagnosed with the Big E we think it is the end, rather it is the beginning of the end, we cannot let... or allow the Big E to control our lives, but rather we control IT!" That is so embossed in my mind, I believe that is part of what keeps me going, because I am so stubborn and determined that I will win whatever obstacle is placed in my path, God has put me on this earth for a reason. I would like to say "Thanks" to Lori and Love Your Lungs, Breathe For Life... I now know the reason.

My Dr. suggested that I go to pulmonary rehab. I had to wait about a week before there was an opening to get in. And I believe the whole session was for 4 weeks. The first day the p/t's do an evaluation, meaning a walk timed test that lasts about 6 minutes, they check your heart rate, respiratory rate, and pulse. That gives them an idea on how to personalize your goals for rehabilitation. The first day was scary, I wasn't sure what to expect. While I was waiting to be evaluated an older lady came out of the exercise room and said to me, "have you ever been here before?", I replied "no, I have not, this is my first day", she said "you're gonna just love it, when I first came here I was on oxygen 24/7 and now I am off it, I can now get on a plane and visit my grandchildren!"
I have never forgotten those words and the joy in her eyes. From that day forward I had a goal and a wonderful memory to keep me going. I knew I was going to ace the course and I did. I couldn't walk or talk at the same time, nor could I walk any distance without being so short of breath, it was scarey and the anxiety that went with it. Due to the awesome people that worked with us daily and retrained us how to walk and talk, breathe properly, maintain a healthy diet, and exercise... I find myself a whole lot better. Anxiety sometimes comes around but now I know how to deal with it.
I continue to exercise, it is very important... I eat healthy and continue what I learned in Pulmonary Rehabilitation class.
Once the course is completed, you receive a diploma. It is nice to look at, and see where we were and how far we have advanced. You also have the option to continue in a maintainance course where you go every week for as long as you want to continue the program or you can do it yourself, which is what I chose to do. About 4 weeks later they schedule you to return to the Pulmonary Rehab. center for a check up, meaning another timed 6 minute walk. Once you are done and all is well... you are on your own!
Please feel free to write in and share your experiences with Pulmonary Rehabilitation. Those of us who have gone through it may be able to help others who are uncertain about joining a class. Also, if anyone has any questions, again... please feel free to write to me. I will try to help you in any way that I can.

Let's Breathe Easy Together
1 2 3 Inhale... 1 2 3 4 Exhale

Your friend,
Sandy

Stress and COPD

I had this thought today and would like to share it with you. It is a situation that I had been dealing with in the begining of November 2006, but it is example of how stress plays a very big part in your life with COPD. I had to move out of my apartment, look for a new place to live and also a new job. Which of course would put a lot of stress on anyone. After several weeks I did find a place to live and luckily a job. But, in the meantime...this is my story.

I had been having trouble sleeping for some time. I did not realize it at first, but finally realized and attributed it to the stress of the move... and the new job that I would be starting. All of this leads to shortness of breath, fatigue, and in my case loss of appetite.
Now... my theory was this... Stress can create havoc within our system, everyone knows that. So, my thoughts were... what do I do about my job... I cannot be without a job, sooooo I needed to try a different approach with the job... and with the move. I decided to ask my friends and neighbors for their help with the move.... and believe it or not... I felt much better. I then reapplied at the Sweetbay Store which I had worked when I first moved to Ft. Myers, but had to take a leave of absence when I fractured my ankle.
On November 26, 2006 I finally moved everything into my new apartment and out of storage. I received a sparkling review from Human Resources and received the job at the Sweetbay Store deli.
I was finally able to "Breathe Easier". My one suggestion when living with COPD and dealing with a stressful situation is to try to put it into some type of perspective. Write down your problems and think of reasonable solutions on how you can take care of these problems. Coming up with a game plan is much easier than jumping in head first and jeopardizing your health.

Breathe with me now...
1 2 3 ... Inhale ... 1 2 3 4 ... Exhale

Sandy

Germs and the Flu

I wanted to share a quick little tip with all my friends. Cleanliness is so important this time of year when there are germs from colds and the flu spreading around. I carry sanitary wipes with me where ever I go. I use them after I open any door or after i've used a shopping cart. I'm sure you can come up with a million other uses for them. Most supermarkets do provide those wipes, but just in case they don't... I always have my own supply! If you have other ideas for using sanitary wipes, please share them with us.

Breathe Easy,
1 2 3 Inhale ... 1 2 3 4 Exhale

Sandy

Water Drinking

I have a quick "Tip" that I would like to share with everyone. "Water Drinking"... It is one of the most important treatments for Lung Disease. The water helps to keep the mucus thin and thus makes it easier to cough up. It is suggested that we drink 8-16 cups of water or juice a day. It may take a few days to a week for you to notice the difference. This much fluid will make you urinate more, but in time your body will adjust. I drink at least 16 glasses of fluids a day... this is good for me because I perspire so much. I also drink Gatorade to maintain my electrolyte level. PLEASE ask your doctor if 8-16 cups of fluids is ok for you to drink. Some people cannot drink alot of fluids because of Kidney Disease, Prostrate trouble or Heart Disease. So...just as a precaution... check with your doctor first. Breathe Easy! ... 1 2 3 Inhale ... 1 2 3 4 Exhale, Sandy

"Fear & Panic" with COPD

Happy New Year!

I hope you all had a Happy Holiday.

But now it is time to get back to work!!

As COPD patients we all know that the cold and flu season is not a good time for us. I would like to share a few experiences that I have had in the past week or so.
Last week a co-worker came back to work after she had been off for two days with the FLU! I "panicked"..."fear" set in... I can't catch it... I will get pneumonia and end up in the hospital. So I called my Pulmonologist who advised me to leave work early or ask that she leave. The results... she left.

Then this week, a customer came in with a young child who was "Whooping" up a storm, actually they both were. Let me tell you, as soon as she left I got the lysol spray out, sprayed the counter and anything else that she may have touched. It is very frightening. No one else really knows what we go through on a daily basis.

I feel this is an interesting fact of how this disease "can have control over us"... but as I have said many times... "We cannot let it control us, we have to control it."

Okay... let's try this again,

Breathe Easy... 1 2 3 Inhale ... 1 2 3 4 Exhale

Have a Safe and Healthy New Year!
Sandy

I Don't Like Myself Today

Good morning my friends,
Have you ever looked in the mirror and thought... UGH.... "I dont like myself today." Well, when you have COPD/Emphysema that may happen quite often to you.
I woke up this morning, looked in the mirror and decided... "I don't like myself today." You may ask "WHY", what does COPD have to do with "not liking yourself?"
Before I was diagnosed with COPD/Emphysema, I weighed in at a comfortable 145 lbs., my height 5'9" (not too bad), now I have gone way beyond that. The worst part is the barell effect it has on our bodies and the steroids that we have to take.
My clothes do not fit the same way anymore. So you see... some days... "I just don't like myself" hopefully... "tomorrow I will like me again."
I have included an excerpt from an interesting article about COPD/Emphysema explaining about the barrell chest effect for those of you who do not know about it.

Clinical Manifestations
Typically patients with emphysema will have a very distinct "barrel chest." This is due to the problem with the lungs being in constant state of hyperexpansion. The normal negative pressure required for inspiration and the positive pressure required for expiration is lost as the lungs are in a constant state of inflation. Therefore, expiration becomes an active task, increasing the work of breathing. The "barrel chest" is directly related to the ribs as they become fixed in the inspiratory position combined with the loss of elastic recoil of the lungs. Dorsal kyphosis, prominent anterior chest and elevated ribs will contribute to this appearance.

http://everything2.com/index.pl?node=emphysema

May you have a healthy and joyous holiday season.

Breathe easy,
1 2 3 Inhale ... 1 2 3 4 Exhale

Sandy

An Interesting Question

Hello and what a beautiful day it is!!
Today at work I had a gentleman ask me a very interesting question. He asked me if "Emphysema" hurts! I replied "it does"... but not in the way that you think, because alot of folks do not understand it. Physically it does not hurt as far as pain, however, we need to get the information out about what this disease does to your body. He then told me that he is trying to quit smoking again, I told him I would be very happy to be his coach. I will see him tomorrow and promised to bring him information on COPD/Emphysema and Asthma for him to read. Isn't life grand when you can help someone! I just love it!
Feel free to write to me anytime, I love to receive mail!!

Breathe Easy,
1 2 3 Inhale ... 1 2 3 4 Exhale
Sandy

"Taking a Shower"...

Hello everyone!
I hope you have all been "breathing well" since the last time I posted. I have been extremely busy, as I have spent the last few weeks moving into a new place and have also started a new job.
I have a little "tip" that may make life a bit easier for you.

Because of our limited breathing, I have found that using a terry cloth bath robe to dry off after a shower will reduce the amount of air we use to dry, as opposed to using a regular towel.

Isn't it amazing how much more we can do with knowledge... I hope to continue to share my experiences and knowledge with all of you as we continue our journey together, till we meet again...

Breathe Easy,
1 2 3 Inhale ... 1 2 3 4 Exhale
Sandy

How do you describe a "Good Day" or a "Bad Day" with COPD?

I was thinking of some of the questions that I have been asked concerning "Living with COPD". The "Title" for today is one that people have asked me many many times.

When I wake in the morning, I feel refreshed the air quality is fresh and clean, I slept well and I feel well; that is how I perceive a "Good Breathing Day". Today is a very good example of a "Bad Breathing Day", I had trouble sleeping last night, we had the windows open thus breathing in "heavy humid air". The whole day was a strain for me. I usually end up loosing my voice from the strain of talking and trying to breathe. I also end up with a headache from lack of oxygen. After using my resuce inhaler; my breathing is not as strained because my lungs are taking in more oxygen. Pursed Lip breathing is also a great asset, but I will talk more about that another day.
There is also another trigger that affects my breathing. At work, there are folks that smoke. They go out for their "Butt Break" and then not realizing that when they come back in, there is the lingering smoke on their clothes; this second hand smoke immediately tightens my chest in-turn making it hard for me to breath.

Those who have been blessed to beable to keep their healthy lungs, do not understand how difficult the smallest tasks may be for us. There are times I cannot walk and talk at the same time. Or I cannot eat a large meal because I cannot breathe.

I have just given you a few examples of my triggers for Good Day and Bad Day Breathing. I am sure every COPD patient could name so many more. Let us hear from you. We can all learn so much from each other. Please do not be shy or embarressed... let's help one another. I feel newly diagnosed COPD patients, actually all patients need to know what to expect... and who can help them better than us, we cope with this disease day after day... it will give you a great sense of self worth.

Let's try this again...
"Breathe Easy"... 1 2 3 Inhale ... 1 2 3 4 Exhale
Sandy